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Ultra-violet: One Girl's Prader-willi Story Chelsea Mccutchin
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Ultra-violet: One Girl's Prader-willi Story
Chelsea Mccutchin
Estimated to occur once in every 15,000 births, Prader-Willi Syndrome is a rare genetic disorder that includes features of cognitive disabilities, problem behaviors, and, most pervasively, chronic hunger that leads to dangerous overeating and its life-threatening consequences. Ultra-Violet: One Girl's Prader-Willi Story draws on dozens of intensive interviews to offer insight into the world of a young girl with Prader-Willi Syndrome. For Violet, Prader-Willi Syndrome impacts everything from family and social relationships to education to her own self-image. But with the persistence of her parents and the help of experts, she will eventually discover not just how to live with Prader-Willi Syndrome-but how to live as Violet.
| Media | Books Paperback Book (Book with soft cover and glued back) |
| Released | September 8, 2014 |
| ISBN13 | 9781939418708 |
| Publishers | RTC Publishing |
| Pages | 82 |
| Dimensions | 170 × 244 × 4 mm · 145 g |
| Language | English |
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